It seems that, even though they require a bit of work, all parents would love to spend time decorating and planning the perfect birthday for their child.
Birthday party ideas come from a mind filled with the happy promise of all the milestones that lay a head. Soon your six year old girl will be the happy bride.
But, what if you'd been informed by a doctor that your child had the genetic disease called Hutchinson-Gilford Progeria Syndrome?
Also known as Progeria, this syndrome is fatal. It literally means "prematurely old." This means that when your child is still chronologically young, they will have the appearance and symptoms of a very old person. They may die between 8 and 21 years old, with the average age being 13.
First recognized in 1886 by Dr. Jonathan Hutchinson, Progeria is thought to be caused by the LMNA (pronounced: lamin-a) gene. The LMNA gene in turn leads to the creation of the Lamin A protein which acts as a stabilizing force for the cell's nucleus.
In sum, a faulty Lamin A protein leads to the cells instability, with this "prematurely old" condition being the result.
Birthday Party Ideas for Children with Progeria: Little Child Interests
Think of how the creativity for your child's birthday party could suddenly be unleashed if you realized that their 13th birthday might well be their last.
Remember, they are still a child in a prematurely old body. With this in mind, wouldn't they still appreciate balloons and the contact of their friends?
In coming up with birthday party ideas for children with Progeria, then, maybe the hardest part is still just reacting to the simple interests they have as children.
Usually, children with Progeria die of Atherosclerosis (heart disease). However, during their short life they also have symptoms associated with old age like stiffness in the joints and a loss of body fat.
First recognized in 1886 by Dr. Jonathan Hutchinson, Progeria is thought to be caused by the LMNA (pronounced: lamin-a) gene. The LMNA gene in turn leads to the creation of the Lamin A protein which acts as a stabilizing force for the cell's nucleus.
In sum, a faulty Lamin A protein leads to the cells instability, with this "prematurely old" condition being the result.
Birthday Party Ideas for Children with Progeria: Little Child Interests
Think of how the creativity for your child's birthday party could suddenly be unleashed if you realized that their 13th birthday might well be their last.
Remember, they are still a child in a prematurely old body. With this in mind, wouldn't they still appreciate balloons and the contact of their friends?
In coming up with birthday party ideas for children with Progeria, then, maybe the hardest part is still just reacting to the simple interests they have as children.
Usually, children with Progeria die of Atherosclerosis (heart disease). However, during their short life they also have symptoms associated with old age like stiffness in the joints and a loss of body fat.
In thinking of birthday party ideas, then, you should realize that children with Progeria can't engage in physical activities which are too strenuous.The dilemma in creating birthday party ideas is thus how to think of your child as two people—one is too young to be old, while the other is too old to be young.
Quite obviously, this is a sad situation. And yet, think of the home movies you can have of your child's birthdays. The ideas you have for birthday parties now will create some of the best memories of your child when they are gone.
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